The development of patient registries involves several steps:
1. Defining Objectives: Clear goals must be established to determine the utility and scope of the registry. 2. Data Collection: Identifying the type of data to be collected, such as demographic information, clinical characteristics, and treatment outcomes. 3. Data Management: Ensuring data quality and integrity through standardized procedures and regular audits. 4. Ethical Considerations: Adhering to ethical guidelines and obtaining informed consent from participants.
